Wednesday, June 17, 2015

Special Needs Parenting Whine

My blog hasn't been very entertaining, lately. It's gone back to being a therapy tool where I spill out all my frustrations, failings and sadness.  This post isn't going to be amusing either. Sorry.

It's the end of the school year and that means all those fun end-of-the-school-year things. Field Day was an absolute blast for Max and an absolute nightmare for Tyler. Yes, they made him go outside and tried to make him participate. He has learned that the only way to get out of situations that he can't handle is to "play sick". This so called special needs environment he's been in seems to ignore him when he is trying to tell them he can't handle something. So he cries headache or stomach ache and goes to the nurse. Then we get a phone call.

They used to let him call home from his classroom when he was starting to feel overwhelmed, but that suddenly stopped about a month ago. Right about the time his teacher vanished. We still have no idea what happened to her, but who ever took over the classroom obviously has no idea how to help my son. They ignore his requests to call home and do things like send us text messages every day asking for a permission slip or pestering us about whether Tyler will be attending XYZ event. Awards ceremony? No. Crowds + buffet dinner with associated food smells + music + endless presentations and talking = meltdown. Field Day? Yeah. We asked them to exempt him from that event. Why? Bright sunlight + heat + crowds + noise level + loud music + allergies = meltdown. End of year BBQ at some park 30+ minutes away? Bus ride + crowds + sun + heat + noise + BBQ food smells = meltdown. Hello?! DO THE MATH.

How many times do we need to tell them about his sensory issues? No, we are not coddling him. No, we are not letting him "get away with stuff." No, we are not encouraging him to just "stay home, nap, and eat ice cream."  YOU are trying to put him into situations where he just can't cope. Simple. And pestering us with daily text messages and emails and ignoring everything we say about WHY our son won't be participating is not going to push us into changing our minds.

Or is it. Poor John got so worried over the constant push to make Tyler attend the end of year BBQ that he finally broke down and gave permission for Ty to attend ONLY if he could drive him there, personally (thus avoiding the bus) and ONLY if they had the understanding that if Tyler was feeling overwhelmed, John would just take him right back home. The problem? This was the day before the event. Tyler needs at least a week to get used to the idea of needing to be somewhere he doesn't like. Sometimes more time. He'd already been told he didn't need to go to the stupid picnic. Now, they bullied and pestered poor John into telling our boy he was going.

no notice + breaking a promise + being pushed into something = meltdown

Thanks for that. Did he go to the stupid picnic today? Nope. He has barricaded himself in his bedroom, eaten nothing, and refused to go to school. At all. He might not go tomorrow either. Not that it's a big hairy deal. That's the last day. A half-day. But still... None of this drama was necessary.

Get your act together, ILA. You should know better! If you want to have a fun event that is more inclusive, why not have it INDOORS, in an environment the kids are familiar with (like, the school), break the kids up into smaller groups and maybe have something fun in each classroom (chess/board games in one, video games in another, food in another, music and dancing in another, perhaps a short outdoor activity like a water balloon fight) and let the kids choose. Limit the amount of kids in each room and rotate so everyone has a chance with one quiet room for kids who are done and just want to chill.  Tyler would be all over THAT kind of party.

*sigh*

And they wonder why these kids sometimes beat their heads against a wall. Hell, I want to do that now.

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